Caregiving

Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

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Journal of Gerontological Social Work (JGSW) 61(4) 411-431. Nancy Jokinen is the senior author. A number of Summit members, representing various nationalities, participated in the writing of this article [Nancy Jokinen, Tiziano Gomiero, Karen Watchman, Matthew P. Janicki, Mary Hogan, Frode Larsen, Anna Beránková, Flávia Heloísa Santos, Kathy Service, & Jim Crowe] Abstract: This article, an …

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Health of Parents with Disabilities
Susan Parish, PhD, MSW
January, 18th, 2018

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Webinar 1: Health of Parents with Disabilities Play recording (57 min) View Health of Parents with Disabilities Presentation Handouts Compendium of Health Data Sources for Parents with Disabilities in the United States Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children Presenter: Susan Parish, PhD, MSW (s.parish@northeastern.edu) Abstract: The health of …

Health of Parents with Disabilities
Susan Parish, PhD, MSW
January, 18th, 2018 Read More »

Blind Spot: Understanding a disabled son’s vulnerability as a state of grace

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American Journal of Nursing Blind Spot: Understanding a disabled son’s vulnerability as a state of grace by Diane Stonecipher, BSN, RN “His IQ may have been devastated, but his EQ has not. He has lived 25 years on this earth and his experiences are valuable and visceral to him.” Diane Stonecipher is a nurse living and …

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Publications and Papers from the International Summit on Intellectual Disability and Dementia

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(Glasgow, Scotland – October 13-14, 2016) DOWNLOAD Publications and Papers from the International Summit on Intellectual Disability and Dementia International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plan Abstract: The WHO has called for the development and adoption of national plans or strategies to guide public policy and set goals for services, supports, …

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Caregiving and IDD and Dementia: Report of the Pre-Summit Workgroup on Caregiving and IDD

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This report summarizes the findings and recommendations from a pre-summit activity for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers.  The report was developed by a working group of experts in caregiving, dementia, and intellectual and developmental disabilities (IDD) and organized by the National Task Group on Intellectual …

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Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders

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Source: The National Task Group on Intellectual Disabilities and Dementia Practices Citation: Seven Hills Rhode Island. (2017). Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders. Woonsocket, Rhode Island: Seven Hills Rhode Island and the National Task Group on Intellectual Disabilities and Dementia Practices. For print copies contact: Seven Hills Rhode Island, 30 Cumberland …

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Breaking Stereotypes: Spotlight on Male Family Caregivers

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In the United States, family caregivers are the backbone for the delivery of supportive services for individuals with a chronic, disabling, or serious health condition. 40 percent of family caregivers of adults are men—which equates to 16 million male family caregivers in the United States. Source: Breaking Stereotypes: Spotlight on Male Family Caregivers They identify, arrange, …

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Research Brief: Family Caregiver Support for People with IDD

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The 2010 Family and Individual Needs for Disability Support Survey (FINDS) conducted by The Arc (2011) shows that family caregivers play a critical role in providing supports to individuals with intellectual and developmental disabilities (IDD). Source: Research Brief: Family Caregiver Support for People with IDD | Family Support Research and Training Center This databrief describes …

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Physical and psychological health of family carers co-residing with an adult relative with an ID – Grey

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Source: Physical and psychological health of family carers co-residing with an adult relative with an intellectual disability – Grey – 2017 – Journal of Applied Research in Intellectual Disabilities – Wiley Online Library Abstract Background Providing long-term care to an adult relative with intellectual disability can impact negatively on caregivers’ health and well-being. Methods Data …

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NTG Caregivers Newsletter on ID and Dementia Practices (Volume 1, Issue 1)

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Welcome to the first issue of the NTG Caregiver News (Volume 1 Issue 1) March 2017. This publication has grown out of the NTG’s Family Caregiver Online Support Group for those who are caring for, or have cared for, loved ones with Alzheimer’s and intellectual disabilities. Once each month, we open the airwaves to share …

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