Down syndrome

An international survey on the impact of COVID-19 in individuals with Down syndrome

Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Source: medRxiv ABSTRACT Background Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Methods The T21RS COVID-19 Initiative launched an international …

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New Guidelines For Treating Adults With Down Syndrome

“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, or GLOBAL, which spearheaded …

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Intellectual disability and dementia: perspectives on environmental influence

This study provides a beginning point to establishing a framework for creating supports and addressing barriers to participation for adults with intellectual disability and dementia based on direct input from potential service consumers and their caregivers. People with intellectual disabilities and dementia provide valuable insights into their experiences through engagement in accessible research. Source: Emerald …

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Alzheimer’s Association > ISTAART > PIA > Down Syndrome and Alzheimer’s Disease

Source: Alzheimer’s Association > Membership > ISTAART > PIA > Down Syndrome and Alzheimer’s Disease Matthew P. Janicki, PhD has joined the governing committee for the ISTAART DSAD PIA. Individuals with Down syndrome develop Alzheimer’s disease (AD) neuropathology with near conformity in their 4th to 5th decade, and are at a much higher risk of …

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What are the perspectives of adolescents with Down syndrome about their quality of life? A scoping review

Source: British Journal of Learning Disabilities-Wiley Online Library This study looked for information about the quality of life of adolescents with Down syndrome. We found two studies about quality of life that included the voice of the adolescent with Down syndrome. Most of the research includes parents’ voices. Parents’ views are important, but we need …

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