Research Reports/Briefs

Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities

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Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J. & Dufresne, D. This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools …

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A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report

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A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report (2007). Heller,T., Connolly, K. & Lacey, B.  Chicago: Institute on Disability and Human Development, University of Illinois at Chicago. This report describes the development and outcomes of a one-stop center that meets the …

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Sibling Leadership Network Update

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Sibling Leadership Network Update (2007), Kramer, J., & Heller, T. Highlights of the RRTCADD’s first Sibling Leadership Conference for siblings of people with disabilities held on November 9-10, 2007 at Washington, D.C. The conference featured over 80 brothers and sisters of individuals with intellectual disabilities.

Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning

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Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning (2006). Kramer, J. & Heller, T.Little is known about the role adult siblings play in planning for the future care of their sibling with a developmental disability. This research brief presents the results of a sibling survey to find out the extent siblings …

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RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities

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RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities (2006). Yamaki, K., Heller, T. & Rimmer, J. This brief compares the rates of obesity between adults with and without I/DD from 1985 to 2000. It is based on an analysis of the National Health Interview Surveys. Can be downloaded at no charge …

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Sibling Connections Newsletter, Fall 2005

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Sibling Connections Newsletter (Fall 2005). Kramer, J. & Heller, T. RRTC on Aging with Developmental Disabilities.Highlights of the RRTCADD’s first conference for siblings of people with disabilities held on October 29-30, 2004. The conference featured nationally known experts on the lifelong relationships of people with disabilities and their siblings and also provided siblings the chance …

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Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project)

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Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A. A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities.

Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research

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Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research (2005). Heller, T., Janicki, M. & Hawkins, B.  In K. C. Lakin, & A. Turnbull (Eds.), National Goals and Research for Persons With Intellectual and Developmental Disabilities (pp 311-322). Washington, DC:  American Association on Mental Retardation.

Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony

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Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony (2005). Factor, A. This brief identifies the issues that aging adults with I/DD and their families face, indicating why their service and support needs should be included in the 2005 White House Conference on Aging Agenda.

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